Our Story

We are a grassroots group of families impacted by Huntington’s Disease. This group will be working closely with HDSA to grow our Affiliate into a formal Chapter.

The group will be seeking opportunities to educate healthcare providers, law enforcement, and local leaders while advocating for our families.

The 7th Annual Team Hope Walk will be on Saturday, September 29, 2018 at Craig Ranch Regional Park. Look for the sign up and donor information in the coming weeks.

Volunteers are always needed and welcome.
Current volunteer needs include:
  • Assistance securing sponsors for the Team Hope Walk
  • Auction items for fundraising events.
Some tasks can be done remotely by computer. If you would like to volunteer some of your time, email us at HDSALV@cox.net 

SUPPORT GROUP

Our goal is to help connect those affected by the disease to offer support on an ongoing basis. Current support groups available are listed here:

CLEVELAND CLINIC LOU RUVO CENTER FOR BRAIN HEALTH
888 W. Bonneville Avenue, Las Vegas, NV 98106
Third Thursday of the month
12-1pm
Please contact Contact: Donna Munic, Ph.D at municd@ccf.org or 702-483-6036
 
HDSA Online Support Groups

COMMUNITY EVENTS

We organize events throughout the Southern Nevada community to raise money to support research for HD as well as raise awareness about the disease. Check the events page for more details.


VOLUNTEER

The Huntington’s Disease Society of America always welcomes volunteers. If you would like to donate your time, please contact:

Anita Dominguez
Regional Development Director
Huntington’s Disease Society of America
P. O. Box 10368
Burbank, CA 91510-0368
p. (760) 566-9622
adominguez@hdsa.org

Nanette Schlarmann
Pacific Southwest Regional Manager
Huntington’s Disease Society of America
California/Nevada/Utah/Arizona Region
P.O. Box 2078
San Marcos, CA 92079
p. (760) 566-5161
nschlarmann@hdsa.org
Share Tweet

Share a link